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| STXBP1-associated ID and epilepsy |
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Presented by
Mathieu Milh (FR) & Ganna Balagura (IT)
Thursday, 10th June 2021
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The list of EpiCARE centres is online
Physicians and patients wishing to know how to directly contact the medical teams members of EpiCARE can now use our new dedicated website tool.
Details on diagnostic and treatment facilities available are also provided. For most of our 43 members, the referral information is now online.
Have a look!
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Welcome to our new collaborating partners
We are happy to announce that the Beaumont Hospital of Dublin, Ireland, and the Greek Rare Epilepsies Consortium of Athens, Greece, have join our evergrowing list of collaborating partners!
Find the full list here
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Get to know your EpiCARE team members
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We are very happy to welcome Anne Robert amongs us! She joined the coordination team in May as the new communication manager.
Specialized in Digital communication, she is looking forward to learn more about the ERNs ecosystem, and to develop the online presence of EpiCARE.
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| Online courses available |
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The first EJP RD MOOC (Massive Open Online Course) “Diagnosing Rare Diseases: from the Clinic to Research and back” has started on 26 April, and it will be open for free for 7 weeks.
Get more information
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The European Academy of Neurology has decided to go virtual again for the 7th EAN Congress on June 19-22, 2021, originally to be held in Vienna.
They look forward to offering you the opportunity to learn from experts in your field, grow your professional network, and discover the latest best practices in neurology, all in the comfort of your home.
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EpiCARE Case Discussions are scheduled every 2nd, 3rd and 4th Wednesday of the month from 4:00pm to 5:30pm CET.
Both surgical and non-surgical cases are discussed by panels of experts, full or affiliated members of EpiCARE. See the agenda on our website.
To receive the link to join the case discussions, you must register.
Please follow this link to complete your registration.
Registration is only required once to be placed on the mailing list.
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| EpiCARE SCIENTIFIC PUBLICATIONS |
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We share below the latest collaborative works of our members
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- Mikati, M. A., Panagiotakaki, E., & Arzimanoglou, A. (2021). Revision of the diagnostic criteria of alternating hemiplegia of childhood. European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society, S1090-3798(21)00099-4. Advance online publication. https://doi.org/10.1016/j.ejpn.2021.05.004
Significant progress has been made in the identification and surgical treatment of insular and insulo-opercular epilepsies, including more precise anatomo-clinical correlations to optimally plan SEEG investigations, and experience in using minimal invasive surgery to reduce peri-operative morbidity.
Discover more publications on our website.
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| WE WANT TO HEAR FROM YOU! |
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Any news you would like to share, or maybe feedback on this newsletter?
Contact us anytime, we would love to chat.
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Message to the EpiCARE medical teams and ePAG : share with us information on activities you would like us to include in upcoming issues of our newsletter at Ця електронна адреса захищена від спам-ботів. Вам потрібно увімкнути JavaScript, щоб побачити її.
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