This course is clinically – oriented, targeted to specialists at the second and third level of epilepsy care and focused on comprehensive aspects of diagnosis and treatment of children and adults with epilepsy. It also includes the basic sciences in clinical epileptology issues, and comprehensive care of patients with epilepsy.

The faculty consists of leading International epileptologists. The faculty members give lectures and conduct interactive case discussions and/or tutorials on relevant aspects of epileptology. 

See the preliminary programme here

“Drug-resistant epilepsy in the 21st century: From molecular mechanisms to precision therapies” will take place on Tuesday, 20 June 2023 in Prague, Czech Republic.

This exciting and unique one-day meeting will introduce and discuss in detail all the major developments including current clinical indications for Drug-resistant epilepsy in the 21st century. A broad faculty of international experts will bring you up-to-date with the history, practice and future developments in the rapidly developing field of drug-resistant epilepsy.

More information here.

Other upcoming events:

• 23 February - 25 June 2023: International Online Course on Pathogenesis of Epilepsy. More info
   
• 20-24 June: 15th congress of the European Paediatric Neurology Society. More info
   
• 1-4 July: 9th Congress of the European Academy of Neurology. More info

• 17-28 July : San Servolo Epilepsy Course "Early pediatric onset epilepsies: from syndrome and management to future perspectives". More info
   
• 2-6 Sept : 35th International Epilepsy Congress in Dublin, Ireland. More info.

• Henshall, D. C., Arzimanoglou, A., Dedeurwaerdere, S., Guerrini, R., Jozwiak, S., Kokaia, M., Lerche, H., Pitkänen, A., Ryvlin, P., Simonato, M., & Sisodiya, S. M. (2023).
  Shaping the future of European epilepsy research: Final meeting report from EPICLUSTER. Epilepsy research, 189, 107068. Link.
   
• Nott, E., Behl, K. E., Brambilla, I., Green, T. E., Lucente, M., Vavassori, R., Watson, A., Dalla Bernardina, B., & Hildebrand, M. S. (2023).
  Rare. The importance of research, analysis, reporting and education in 'solving' the genetic epilepsies: A perspective from the European patient advocacy group for EpiCARE. European journal of medical genetics, 66(3), 104680. Advance online publication. Link. 

You can consult recent publications on rare and complex epilepsies, epilepsy surgery and other topics on our scientific publications webpage. 

EpiCARE members: please remember to mention EpiCARE in your affiliations or in the acknowledgements / references when appropriate. 

AHC international awareness day was on 18th of January!To learn more about AHC, check out our leaflets and Patient Journeys. 

Members of ePAG EpiCARE and patient representatives joined forces in preparing and publishing an article titled: Rare. The importance of research, analysis, reporting and education in ‘solving’ the genetic epilepsies: A perspective from the European patient advocacy group for EpiCARE. Authors of the article are: Emma Nott (Hope for Hypothalamic Hamartomas), Katherine Behl (Alternating Hemiplegia of Childhood UK), Isabella Brambilla (Dravet Italia Onlus), Monica Lucente (Associazione Italiana GLUT1 Onlus, 

Rosaria Vavassori (International Alternating Hemiplegia of Childhood Research Consortium) and Allison Watson (Ring20 Research and Support UK) together with the physician: prof. Green, prod. Dalla Bernardina and prof. Hidelbrand.

Article was published in the European Journal for Medical Genetics, and highlights the transformative effect that early genetic diagnosis on the quality of life of individuals with epilepsy, discusses the significant gaps in knowledge and care that currently exist from the patient perspective, and describes some of the initiatives that patient-advocacy organisations have undertaken, and would promote, to fill those gaps

New newsletter coming out soon!

It is our pleasure to announce that this year we will start with a newsletter dedicated to patients' associations. It is our wish to connect and engage more with the wide community of rare and complex epilepsies and provide better support by disseminating relevant information.
The newsletter and related social media are the ideal tools to engage better among ourselves, physicians and broader public. The first edition will be disseminated on the 14th of February 2023.
If you wish to disseminate the information about your association, projects, activities and events you are planning, please contact: Ця електронна адреса захищена від спам-ботів. Вам потрібно увімкнути JavaScript, щоб побачити її.

Any news you would like to share, events planned, publications in the works? 

Share with us any information you would like us to include in the next newsletter at Ця електронна адреса захищена від спам-ботів. Вам потрібно увімкнути JavaScript, щоб побачити її.